From Misdiagnosis to Meaning: How 200,000 Patients Drive Clinical Trials and Get Compensated
Seven to ten years, that's how long most people wait for an accurate rare disease diagnosis, cycling through treatments that don't work and doctors who've never seen their condition. Pam Cusick, VP of Rare Patient Voice, has built a community of 200,000 patients across 1,500 conditions who get paid $120/hour to shape…
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